BEGIN:VCALENDAR VERSION:2.0 PRODID:-//132.216.98.100//NONSGML kigkonsult.se iCalcreator 2.20.4// BEGIN:VEVENT UID:20250907T234704EDT-6945ou4Sxz@132.216.98.100 DTSTAMP:20250908T034704Z DESCRIPTION: \n\n\n \n The Feindel Brain Imaging Lecture Series\n\n  \n\n Wedne sday\, March 9\, 2016 at 2:00 pm\n\n de Grandpré Communications Centre\, Mo ntreal Neurological Institute\n\n  \n\n 'Embracing Open Science: Best Practi ces for Responsible Data Sharing'\n  \n\n \n\n Adrian Thorogood\n\n Lawyer / A cademic Associate at ºÚÁÏÉç\n\n  \n\n \n (Adrian Thorogood B.A.&Sc .\, B.C.L.&LL.B. is a lawyer and academic associate at the Centre of Genom ics and Policy at ºÚÁÏÉç. He is also the Coordinator of the Reg ulatory and Ethics Working Group of the Global Alliance for Genomics and H ealth\, an international consortium that promotes the responsible sharing of research data. adrian.thorogood [at] mcgill.ca).\n\n Genomic data sharin g is imperative for accelerating discovery and translation of findings int o clinical applications\, but raises concerns about privacy protection and regulatory compliance.These concerns are heightened where data is shared internationally\, as applicable laws vary considerably across countries. T o ensure that genomic data is shared responsibly\, best practices have eme rged in areas of consent\, privacy and security\, and access oversight. Th e challenge ahead is to ensure these practices are harmonized internationa lly\, or data will continue to be fragmented into regulatory silos. Accoun tability will also be key for maintaining trust in data sharing. What step s can we take to ensure data sharing standards are clearly communicated\,  monitored\, and enforced?\n\n DTSTART:20160309T190000Z DTEND:20160309T203000Z LOCATION:de Grandpré Communications Centre\, Montreal Neurological Institut e\, CA\, QC\, Montreal\, H3A 2B4\, 3801 rue University SUMMARY:[Feindel Brain Imaging Lecture Series] Adrian Thorogood: 'Embracing Open Science: Best Practices for Responsible Data Sharing' URL:/bic/channels/event/feindel-brain-imaging-lecture- series-adrian-thorogood-embracing-open-science-best-practices-258420 END:VEVENT END:VCALENDAR