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DESCRIPTION:Working to advance knowledge on Arthrogryposis Multiplex Congen
 ita (AMC)\, the IAMC lab led by Noemi Dahan-Oliel\, OT\, PhD\, brings toge
 ther key stakeholders including clinicians\, researchers\, and people with
  lived experience worldwide.\n\nCurrently\, the lab is working on a multis
 ite registry combining phenotype and genotype with patient-reported outcom
 es\, the development of a condition-specific measure\, and caregivers’ exp
 erience in AMC.\n\nIn this virtual presentation\, Shahrzad Nematollahi\, E
 pidemiol\, PhD\, and Clarice Araujo\, OT\, PhD\, postdoctoral fellows in t
 he IAMC lab\, will highlight ongoing research projects that focus on ident
 ifying a common language in AMC\, epidemiological profiles\, a new functio
 nal classification system\, and the co-development of rehabilitation guida
 nce and its implementation in practice.\n\nWednesday December 6th\, 12pm\n
 \nInternational common data elements for AMC research: lessons learned and
  future challenges\n\nShahrzad Nematollahi\, Epidemiol\, PhD.\n	ºÚÁÏÉç Univ
 ersity \n\nExpanding care in AMC: from developing a novel functional class
 ification to implementing rehabilitation guidance \n\nClarice Araujo\, OT\
 , PhD\n	ºÚÁÏÉç \n\nKindly note the webinar will be presented in 
 English.\n\nThis meeting will be held via ZOOM and requires registration. 
 To manage flow and process\, please register below in advance. The present
 ation will begin promptly at 12 noon.\n\nPlease feel free to share in your
  networks with those you feel may be interested!\n\n------\n\nThe SPOTligh
 t on Rehabilitation initiative enables researchers at ºÚÁÏÉç's 
 School of Physical and Occupational Therapy to highlight their work to col
 leagues\, students and stakeholders through webinars\, podcasts\, educatio
 nal videos\, feature articles\, in-person events and other dissemination p
 latforms.\n\n \n
DTSTART:20231206T170000Z
DTEND:20231206T170000Z
SUMMARY:The International Arthrogryposis Consortium in the SPOTlight
URL:/spot/channels/event/international-arthrogryposis-
 consortium-spotlight-352747
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